Please could you pass on to any disability related networks and parent led groups who might be interested in attending this important family support related event. All welcome. This is a free event, though registration is required via Eventbrite. Book your place here. About this event The LEaP (Legal Entitlements and Problem-Solving Programme – Cerebra / University of Leeds, School of Law) is hosting a Conference in Leeds on the 18th October. The Conference’s flyer can be accessed here. This conference aims to identify and discuss commonly occurring problems in accessing key legal rights to health and social care – and how these can be addressed. Session 1 will offer short updates with discussion on completed research projects, including those on home adaptations and home to school transport. Session 2 will be focused on the issue of parent carer blame – covering the experiences of disabled children and their families with the process of social care needs assessments. Session 3 will briefly outline the pending research project concerning allegations of fabricated or induced illness (FII) which will be followed by an open session to identify and discuss future research priorities. The conference is a free event, although numbers are limited. It will take place at the St George’s Centre (close to Leeds Central Station). A live-streaming of the event is also planned for those unable to join us ‘in person’. As with previous conferences our aim is to maximise discussion on key social care legal issues – including gaining feedback on past research and ideas for future research. It is hoped that the event will also provide time for those attending to network and share information. Please contact the event organiser to let them know about any particular need (for example, for access and / or a special dietary need). Please specify which session you would prefer when signing up, ie virtually or at the St Georges Centre. Joining instructions will be sent 24 hours before the event via email once you have registered. All welcome. This is a free event, though registration is required via Eventbrite.
Some West Yorkshire CANN Organisations
SWAN UK is the only dedicated support network for families of children with undiagnosed genetic conditions. Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. We have information leaflets below which are available to download. We are developing leaflets in further languages and these will also be available to download once they are completed. If you can’t find the answer to your question in the resources below or would like to make an enquiry please email: email@example.com. Our animation called ‘Ellie’s story’ explains what it means to have an undiagnosed genetic condition and how SWAN UK helps. Click the link to find out more: bit.ly/elliesstory We offer 24/7 information and support through our online forums for registered members. If you would like to become a SWAN UK member please email: firstname.lastname@example.org or click here to find out more. Don’t forget to check out our news section and join our mailing list too.
Genetic Alliance UK SWAN UK CAN Mezzanine 49-51 East Road London N1 6AH
Training Packages Autism training for staff Do you want your staff to have a better understanding of Autism to support their customer service skills?This training is for staff of large or small companies in a customer facing role. Gain an understanding into the four areas of difference and what your staff can do to promote an inclusive environment for children and adults on the Autistic spectrum Autism training for childminders Training for childminders looks at the theory of Autism and how you can have a better understanding of Autism in your setting. Certificate of attendance will be given upon completion of course. Understanding Autism for parents and carers Our training for parents/carers is designed to meet the needs of all children both pre and post diagnosis. This course often gives parents the first experience of speaking to other parents/carers who have been through a similar process. Our course aims to provide parents and caregivers with the theoretical knowledge in understanding Autism. We also cover Autism specific strategies to be used within the home environment. Full training pack will be provided for you to take home and certificate of attendance. All of our parent courses are run at: ZigZag Community Shop […]
ZigZag Autism Services
Kidz Aware is not-for-profit charity/ social enterprise with 3 core values at our heart: Equality; Inspiring; Embracing. We exist to ensure that all children and adults with a disability have the opportunities to achieve their aspirations in life. We understand first-hand what it means to be a family caring for a disabled child: Gillian Archbold created Kidz Aware in 2006 after her experience of fundraising for medical treatment for her own disabled child, Sabrina. Despite successfully raising the funds required, Sabrina was not able to undergo the treatment and therefore Gillian gifted the money to other disabled children who were suitable for treatments that the NHS could not provide. It was through this experience that Gillian recognised the need for a charity that could support the families of disabled children/Adults and that’s what Kidz Aware has been doing ever since. Gillian and Sabrina still run Kidz Aware together. We believe that everyone can make a valuable contribution to society, but people with disabilities face greater challenges. We want all individuals with any kind of disability to have a voice and be part of a wider solution that supports disability at every level of society. We know what you’re going through […]
Suite Three, Biz Space Business Centre, Denby Dale Road Wakefield WF2 7AZ
North & West Yorkshire Association for Spina Bifida & Hydrocephalus (North & West Yorkshire ASBAH) is a registered charity supporting children, adults and families with hydrocephalus and/or spina bifida in North & West Yorkshire By supporting, informing, and campaigning, North & West Yorkshire ASBAH is continuing to help promote individual choice, control, and quality of life for all the people who use our services. We work in partnership with Shine which is the national organisation for people with Spina Bifida and/or Hydrocephalus but we are a charity in our own right with our own charity number and we have to raise our own funds for our work. We are committed to helping and supporting all our service users, whether this is through planning social and recreational events, or providing up to date information and education to our members. We originally started out as the Leeds Association in 1966 primarily as a parent organisation and we became a registered charity in 1967. Our registered charity number is 252129.
25 Hornbeam Court, Oxford Ave, Guiseley, Ls20 9BW