Please could you pass on to any disability related networks and parent led groups who might be interested in attending this important family support related event. All welcome. This is a free event, though registration is required via Eventbrite. Book your place here. About this event The LEaP (Legal Entitlements and Problem-Solving Programme – Cerebra / University of Leeds, School of Law) is hosting a Conference in Leeds on the 18th October. The Conference’s flyer can be accessed here. This conference aims to identify and discuss commonly occurring problems in accessing key legal rights to health and social care – and how these can be addressed. Session 1 will offer short updates with discussion on completed research projects, including those on home adaptations and home to school transport. Session 2 will be focused on the issue of parent carer blame – covering the experiences of disabled children and their families with the process of social care needs assessments. Session 3 will briefly outline the pending research project concerning allegations of fabricated or induced illness (FII) which will be followed by an open session to identify and discuss future research priorities. The conference is a free event, although numbers are limited. It will take place at the St George’s Centre (close to Leeds Central Station). A live-streaming of the event is also planned for those unable to join us ‘in person’. As with previous conferences our aim is to maximise discussion on key social care legal issues – including gaining feedback on past research and ideas for future research. It is hoped that the event will also provide time for those attending to network and share information. Please contact the event organiser to let them know about any particular need (for example, for access and / or a special dietary need). Please specify which session you would prefer when signing up, ie virtually or at the St Georges Centre. Joining instructions will be sent 24 hours before the event via email once you have registered. All welcome. This is a free event, though registration is required via Eventbrite.
Some West Yorkshire CANN Organisations
The Eden Dora Trust for children with Encephalitis was formed specifically to offer support to children and their families affected by Encephalitis and childhood Acquired Brain Injuries through support, information, education and research. We support children in hospital with Encephalitis and families after hospital discharge, advice on re-integration to school, different forms of rehabilitation, along with working on an Acquired Brain Injury schools award and much much more including raising awareness and funding research into the causes, diagnoses & treatments of Encephalitis/A.B.I; We hold study days & fund training workshops for families, teachers and health care professionals involved with the ongoing care and rehabilitation of children affected by Acquired brain injury and this life changing illness. Helping children and their families feel less isolated, different, misunderstood and alone. The Eden Dora Trust works with the help of their extensive advisory panel and is the only charity in the UK dedicated solely to children who suffer from Encephalitis, that anyone can get, at any time. Our Mission SPEAK: Support – for those affected by Encephalitis to find out about what help is available and how they can access it. Provision – of funding to support further research into the causes, symptoms and potential cures for Encephalitis Education – funding essential training for those […]
500 Charlotte Road, Sheffield S2 4ER
The Eden Dora Trust for Children with Encephalitis
The Leeds Local Offer brings together information about all the services available in the city for children and young people aged 0-25 who have special educational needs (SEN) and disabilities. This includes information about: · Education support · Health Services · Social Care support · Play and leisure activities · Getting ready for adult life · Education, Health and care plans We link to other websites so the information is as current as possible. If you need to talk to someone about your situation call the Leeds SEND information advice support service on 0113 378 5020. You can also drop in to any Leeds library or one stop centre for help to use the website and print off information.
Leeds Local Offer
brainstrust is a brain tumour charity that focuses on support and wellbeing. Little brainstrust is designed for children and teenagers living with a brain tumour diagnosis. Our support specialist for children and families is based in Sussex however has a national role. 500 children a year are diagnosed with a brain tumour, and there are thousands of families living with a brain tumour. Two thirds of children diagnosed with a brain tumour are left with a disability. Families can find communication difficult, and awareness of brain tumours in children is low; this is even though brain tumours now kill more children than any other illness in the UK. We are actively trying to grow clinical links with hospitals and other charities locally and nationally, so that we can collectively work together to provide optimum care to our young patients. Families facing a brain tumour diagnosis of a child feel scared, confused and alone. We know. That’s why we’re working to support families by: Providing unique, honest, coaching-led support by phone (24/7) or email, helping families overcome challenges and find the best possible outcome for their child, and their family Helping families feel less alone by creating communities of peer support, […]
Josephs Well C19 brainstrust Hanover Lane Leeds LS3 1AD
I work with families who are navigating the SEND system and support them to break down the barriers that are often put in place by schools and LA’s. There is hardly ever a quick fix, it’s a journey like no other but my aim is to armour parents/carers with practical advice and the strength to carry on the fight. Currently funded support available through a Lottery Grant.