Some West Yorkshire CANN Organisations
SWAN UK is the only dedicated support network for families of children with undiagnosed genetic conditions. Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. We have information leaflets below which are available to download. We are developing leaflets in further languages and these will also be available to download once they are completed. If you can’t find the answer to your question in the resources below or would like to make an enquiry please email: email@example.com. Our animation called ‘Ellie’s story’ explains what it means to have an undiagnosed genetic condition and how SWAN UK helps. Click the link to find out more: bit.ly/elliesstory We offer 24/7 information and support through our online forums for registered members. If you would like to become a SWAN UK member please email: firstname.lastname@example.org or click here to find out more. Don’t forget to check out our news section and join our mailing list too.
Genetic Alliance UK SWAN UK CAN Mezzanine 49-51 East Road London N1 6AH
Contact a Family is a National Charity supporting families of children with disabilities throughout their journey, from birth – 25 years. We are an information, guidance and advice charity offering help and support across a wide range of issues that families encounter from Health, Education, Finances and Benefits, Family issues, equipment, grants, legal aspects etc. Our team of specialist trained experts that staff our help desk supporting families with queries at times of need ; and we also have parent advisors that work in the regions supporting families with workshops, events, support groups etc.
Contact 209-211 City Road London EC1V 1JN
Contact A Family
Cerebra is a charity supporting families with children 16 and under with brain conditions. We currently fund research throughout the country into various aspects such as behaviour, sleep, premature births and legal issues. We have a sleep service where our sleep practitioner can provide sleep workshops and presentations and also do 1:1 work with families and create a personalised sleep plan. Our regional officers are able to provide information and advice on all sorts of different things, such as looking for specialist equipment (e.g. trikes/car seats) to where to look for funding to help pay for these. I also signpost a lot to relevant organisations/charities and can help with form filling (grants/DLA). We have a lending library where we loan out books for families (for free) these include books on conditions, sleep, sensory, mindfulness, diet, health and wellbeing etc. We also loan out sensory toys, including a couple of weighted blankets. We have a holiday home families can stay in, and have a grants/wills and trusts voucher scheme (however both of these are full/closed at the minute!) We have a free stress helpline families can call, and we publish various parent guides (including DLA guide, anxiety guide, challenging behaviour factsheet, […]
SNAPS (Special Needs and Parent Support) is a charity which supports children with additional needs and their families through the provision of rebound therapy, hydrotherapy (both delivered by highly trained paediatric physiotherapists), swimming and play for the whole family. This play might be music therapy, music for fun, dance, sing and sign, boccia, soft play or arts and crafts. We believe it is important to provide social opportunities for the whole family including siblings; with the child with special needs utilising either hydro or rebound and then having fun with the rest of the family through our other activities. We offer a safe and welcoming environment where your child can benefit from specialist physiotherapy, you can meet other families and you all can play together. You do not need a professional referral to access SNAPS services. We operate between 9.15am and 1.30pm on term time Saturdays at two sites: Penny Field School, Tongue Lane, Meanwood, North Leeds. Penny Field is the North West SILC in Leeds. Hydro, swimming and rebound therapy available. Broomfield School, Broom Place, Belle Isle, South Leeds. Broomfield is the South SILC in Leeds. Rebound therapy and sensory room available. We also offer a football club for children with additional needs and their siblings. We believe […]