Some West Yorkshire CANN Organisations
Communication Matters (CM) is a UK-wide charity committed to supporting people of all ages who find talking difficult because they have little or no clear speech. This can be via paper based communication supports or computer based voice output, we call this AAC (Augmentative and Alternative Communication). Communication can be compromised across many conditions such as Cerebral Palsy, Down Syndrome, Brain Injury, Learning Difficulties and Autism. We have an associate membership of around 400 people. Members come from across the UK and from all the various interests in AAC – personal experience, professional, commercial and research. Members receive copies of our Journal which is published 3 times a year, amongst other benefits. We hold a number of events: most notably our International AAC Conference held over 2.5 days at the University of Leeds each September, as well as UK-wide AAC Information Days (product demonstration days) and Study Days which focus on a particular topic of AAC. We also have many online resources and publications and an AAC Forum. If you are interested in finding out more, please do not hesitate to contact us:
The William Merritt Centre provides impartial information, advice and assessment on equipment and practical aspects of daily livings for disabled people of all ages, their carers and professionals. Anyone can contact the centre directly for an assessment, alternatively referrals can be made via GPs, OTs and other health care professionals. Our paediatric Occupational Therapists offer assessments involving: buggies, wheelchairs, wheelchair accessible vehicles, beds, seating and Try B 4 U Fly. We also regularly run tricycle, walkers and car seat clinics. Our paediatric therapists can arrange assessments with companies who specialise in paediatric equipment and offer advice on how to purchase products. If statutory funding is not available, our therapists are happy to write a report to support charity applications for funding. The centre also provides a service called Switches 4 Kidz, whereby we provide impartial information, advice and assessment about adapted toys and switches for children, families and professionals and the centre has developed a loan library of adapted toy and switches for families to borrow. Following on from this we provide assessments for accessing games consoles, computers, iPads, phones etc. and run regular accessible gaming drop in sessions during school holidays.
WMC 100 Town Street, Rodley, Leeds, LS13 1HP
William Merritt Disabled Living Centre
PhysCap is a Yorkshire charity dedicated to improving the quality of life for children suffering from physical and learning disabilities. Run entirely by volunteers meaning every penny raised goes directly to those in need, PhysCap carry out fundraising events over the course of each year so as to be able to support families with children 18 years and under. PhysCap offers assistance to individual children as well as groups of children for example within schools by way of specialised and therapeutic equipment, residential breaks and play schemes and other practical aspects of daily living. PhysCap is happy to consider applications from children with or without diagnosis as long as it is supported by an Occupational therapist, Physiotherapist or alternative professional body. For more information or to fill in an application form please contact us.
Bermuda House, 64c Roseville Road Leeds LS8 5DR
SWAN UK is the only dedicated support network for families of children with undiagnosed genetic conditions. Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. We have information leaflets below which are available to download. We are developing leaflets in further languages and these will also be available to download once they are completed. If you can’t find the answer to your question in the resources below or would like to make an enquiry please email: email@example.com. Our animation called ‘Ellie’s story’ explains what it means to have an undiagnosed genetic condition and how SWAN UK helps. Click the link to find out more: bit.ly/elliesstory We offer 24/7 information and support through our online forums for registered members. If you would like to become a SWAN UK member please email: firstname.lastname@example.org or click here to find out more. Don’t forget to check out our news section and join our mailing list too.
Genetic Alliance UK SWAN UK CAN Mezzanine 49-51 East Road London N1 6AH