Children’s Additional Needs Network
March 31, 2022 1:00 pm
March 31, 2022 2:00 pm
This event has no entrance fee
online
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0113 3785020
SENDIASS@leeds.gov.uk
https://sendiass.leeds.gov.uk/
SWAN UK is the only dedicated support network for families of children with undiagnosed genetic conditions. Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. We have information leaflets below which are available to download. We are developing leaflets in further languages and these will also be available to download once they are completed. If you can’t find the answer to your question in the resources below or would like to make an enquiry please email: info@undiagnosed.org.uk. Our animation called ‘Ellie’s story’ explains what it means to have an undiagnosed genetic condition and how SWAN UK helps. Click the link to find out more: bit.ly/elliesstory We offer 24/7 information and support through our online forums for registered members. If you would like to become a SWAN UK member please email: joinus@undiagnosed.org.uk or click here to find out more. Don’t forget to check out our news section and join our mailing list too.
Genetic Alliance UK SWAN UK CAN Mezzanine 49-51 East Road London N1 6AH
Oily Cart is a theatre company that specialises in creating sensory shows for, with and alongside disabled young people (0-25 years) and their families. Oily Cart create remarkable, accessible sensory shows that connect with babies, toddlers, disabled children and young people, and their families. Founded over 40 years ago, in the past decades we have pioneered a whole new artform: Sensory Theatre. By pushing theatre beyond words – using not just 5, but all 33 senses – we create tactile wonderlands that meet each child where they’re at. Each sensory experience is a space to be who you are and be together, re-imagining the world as it should – and will – be. We collaborate with disabled and non-disabled artists of all ages, always considering those who experience the most barriers first. At Oily Cart we don’t tell children how they should watch the theatre. We learn from them what theatre should be.
Oily Cart, Smallwood School Annexe, Smallwood Road, London SW17 0TW
The Cinderella Club has one basic aim. “To improve life for the underprivileged children of Bradford.” We try to achieve that by enabling them to :- Participate in activities alongside their school friends. Obtain some of the desirables in life that others take for granted. Obtain some of the necessities for life within their own area of need. We cannot wave magic wands to make this happen but we can do it in other ways:- Provide funding that they cannot acquire for themselves. Provide contacts who can help their situation Influence others to get involved.
16 Chapel Street Bradford Bd1 5DL
Regional adoption agency for West Yorkshire. Providing support for families with adopted children. Our core adoption support offer includes access to specialist support groups, stay and play sessions, access to a members area on our website, training workshops and parenting help. We also have a multidisciplinary team who can help with speech and language therapy, clinical psychology, education support. We can also help adoptive families access specialist therapeutic support through the Adoption Support Fund following a needs assessment.
Kernel House, Killingbeck Drive, Leeds, LS14 6UF
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