Some West Yorkshire CANN Organisations
SWAN UK is the only dedicated support network for families of children with undiagnosed genetic conditions. Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. We have information leaflets below which are available to download. We are developing leaflets in further languages and these will also be available to download once they are completed. If you can’t find the answer to your question in the resources below or would like to make an enquiry please email: email@example.com. Our animation called ‘Ellie’s story’ explains what it means to have an undiagnosed genetic condition and how SWAN UK helps. Click the link to find out more: bit.ly/elliesstory We offer 24/7 information and support through our online forums for registered members. If you would like to become a SWAN UK member please email: firstname.lastname@example.org or click here to find out more. Don’t forget to check out our news section and join our mailing list too.
Genetic Alliance UK SWAN UK CAN Mezzanine 49-51 East Road London N1 6AH
Information on the services and support available to children and young people (birth to 25yrs) with Special Educational Needs and/or Disabilities
Town Hall, PO Box 51, Halifax, HX1 1TP
Calderdale MB Council
The Children’s Trust is the UK’s leading charity for children with brain injury and neurodisability. We deliver rehabilitation, education and community services through skilled teams who work with children and young people aged 0-18, and their families. The Children’s Trust Brain Injury Community Service provides specialist goal-orientated neurorehabilitation delivered in the child’s environment, either at home, in school, or a combination of both settings. Delivered by specialists from a range of clinical backgrounds, we work with the child and their family in a non-intensive, consultative way focusing on the needs which result from an acquired brain injury. These may be social, emotional, cognitive, communicative, and behavioural needs. Our ultimate goal is to maximise the child/young person’s participation in their everyday life. In partnership with Leeds Children’s Hospital, we have a clinical specialist based in the hospital who provides information, education, advice and support to families and other professionals. In addition, we also provide long-term support to the child and their family at key transition stages such as starting school, moving to secondary school or college, starting a new job or leaving home to live independently for the first time. In addition, The Children’s Trust Brain Injury Hub […]
Martin Wing F Floor, Leeds General Hospital, Leeds, LS1 3EX